Tuesday, 17 May 2016

2016 CPSK-IRA CEREBRAL PALSY CHARITY WALK

Formed in 1994 Cerebral Palsy Society of Kenya (CPSK) is a charitable organization that deals with children/persons afflicted by cerebral condition in the country. Cerebral Palsy is a developmental disability caused by brain damage before, during or after birth.

In the last four years through the sponsorship from Insurance Regulatory Authority (IRA) the society has achieved high levels of awareness about the condition and has been able to offer better rehabilitation services with the aid of other sponsors, partners and well-wishers through these walks.

This year, CPSK wants to acquire appropriate assistive devices for children and persons not only in Nairobi but also in Kitui, Kilifi, Makueni, Taita Taveta and Kiambu.

Be Part of the journey! Join us!

Saturday 25th June 2016 from 8.00am at Kuchekuche grounds (Nyayo Stadium).
You may participate as a corporate by requesting for the sponsorship categories form, as a group, family or individuals by buying a t-shirt @ 1000 kshs.
You can also support by sponsoring a Wheelchair, a child for therapy or donating in any way to the society. Your participation as an organization will go a long way in helping the society to make a difference in lives of the less fortunate.

For more info Contact
CPSK
Jardine Mwangeka (Mrs)          -         Tel: 0722-939317/0708-829681
Joy Namatsi                             -         Tel: 0720-452597
website: cpsk.or.ke

IRA
Noella Mutanda                        -         Tel: 0722-783742
Rosemary Kavili                      -         Tel: 0719-047612
Email: nmutanda@ira.go.ke or rkavili@ira.go.ke

Monday, 5 October 2015

Visit from Progressive Brothers


On 23rd September 2015, a group of six members from progressive brothers visited Cerebral Palsy Society of Kenya and presented to the out patient clinic a massager to help stimulate muscles for the children attending therapy. 

Wednesday, 28 August 2013

Harrison Njomo Intends to drive from Nairobi to Johannesburg in reverse gear to raise funds for CP

 Story by Ben Gumo of Ghetto Radio

Cerebral palsy society of Kenya, a local charity working for persons living with cerebral palsy condition in Kenya, has unveiled an initiative that aims to raise 271 million shillings for the construction of a therapy center and to also create awareness about the condition.



The initiative will see one Harrison Njomo a car dealer drive from Nairobi to Johannesburg in South Africa using a reverse gear.

The 20 day drive initiative is set to commence at the end of October to coincide with the international cerebral palasy month.

Njomo a husband and a father of two says this initiative has been necessitated by his passion for kids and was moved by the recent walk organized by the cerebral palsy society of Kenya where he came face to face with the plight the kids were facing.

His main reason to drive to South Africa is because the country has well established therapy centers for the condition and the long distance using side mirrors will have a great impact especially due to the fatigue associated with long distance cross border driving.

The public will also be updated by way of social media on the progress of the journey and with video clips posted on YouTube and still images on face book and twitter.

The public is requested to donate any amount to PAY BILL NUMBER 891300 ACCOUNT no 184#10 through M-CHANGA in aid of cerebral palsy patients.

The organization also intends to use both the social and main stream media to carry out meticulous publicity about the condition and the initiative to as many Kenyans as they can.

The center according to the organizations CEO Jardine Mwangeka will go a long way in providing therapy services to many people suffering from cerebral palsy in the country.

Statistics indicate that it costs a minimum of 60,000 shillings to offer therapy to one person each year.
Unfortunately, incidences of cerebral palsy are on the rise however many parents choose to lock their kids and kins in the house for fear of being mocked by the society.

The organizations chief executive officer Jardine Mwangeka is however advising parents and the society at large to appreciate and accept those with the condition in a bid to fight stigmatization related with it.


Monday, 11 February 2013

A DOCUMENTARY ABOUT CEREBRAL PALSY AND CPSK


Painting the clinic




Art has a profound effect on anyone, but the benefits of exposing a child with cerebral palsy to it can be huge. This is because this artistic media is enjoyable to children and can be used to support a child’s development in a number of ways such as:-
  •  they can express their emotions
  • develop their communication skills
  • benefit from visual stimulation and cognitive stimulation and even 
  • It is relaxing
The clinic recently held a painting exercise which involved professiona Artist Peter Kimwathi, as well as volunteers and friends from the community. 
























Wednesday, 16 January 2013

The Cerebral Palsy Coast Province Medical Camp



Since 2004 CPSK has held medical camps in Nairobi and one in Thika in 2010 in conjunction with pediatric doctors, orthopedics, ophthalmologists, neurologists, and dentists, ENT specialists and Nutritionists.
The medical camps are hosted to meet the following objectives
  • To provide a forum for doctors to see children with CP condition and to offer specialized advice.
  • To determine the most common diseases among CP children and their most pressing needs.
  • To spread awareness among parents and public and fight stigma associated with the condition.

Through sponsorship from the Insurance Regulatory Authority CPSK was able to meet two of its core objectives. This was possible through the charity walk held on the 30th of June 2012 and the objectives were;   

  •   To strengthen the outreach program and to embark on an aggressive expansion outreach program
  • To continue with the awareness creation and publicity to reduce stigma and to mainstream disability.

EXPANSION TO MOMBASA

For a long time the society had the desire to take its services to the counties as an expansion strategy.
The medical camp also presented a platform to create the much needed awareness among the public who in more ways than one are the cause of stigma associated to the condition. Information is power and since many people do not have information about the condition, it remains mysterious and for this reason people tend to associate with witchcraft and curses thus perpetuating stigma.

The medical camp was organized with help of the following Institutions;

  1. ·         Coast general Hospital
  2. ·         Cerebral Palsy Foundation Tudor
  3. ·         APDK Mbombolulu and PortReiz
  4. ·         Muncipal Council through PHD
  5. ·         Kizurini Special school
  6. ·         Tom Mboya School for Cerebral and Tudor Unit (MH) collaborated.

The Camp

The camp was held on 20th and 21st at the Mombasa Women’s Association Hall which is situated on the southern side of the Island on your way to Likoni Ferry. In collaboration with the above mentioned partners, the following specialists were able to attend;

  • 4 Pediatricians
  • 1 Neurologist
  • 1 ear, nose and throat specialist
  • 3 Dentists
  • 3 Clinical officers
  • 4 Nutritionists
  • 4 Occupational therapists
  • 2 Physiotherapists
  • 1 Orthopedic Technologists
  • 10 Nurses
  • 5 first aiders
  • 2 Counselors

The medical personnel were able to attend to180 children on the two days. After consultations, the parents went away with prescriptions and referrals.


FINDINGS


The most common ailments included: - Upper and lower respiratory infections, convulsions, ear/throat infections, dental problems, malnutrition, skin infections, severe contractures and deformities of the spine.

It was clear that most of the children screened were not getting proper medical care and therapy. This was mainly attributed to the poverty levels encountered in most areas of the coast region. Some parents expressed fear as to whether they would be able to buy the prescribed drugs and assistive devices prescribed.

According to observations many people in Coast province still associated cerebral palsy with witchcraft thus more sensitization was needed.

Children from Kizurini School had more complications than the rest; hence the need to empower parents, the school required a nutritionist and a clinical officer to monitor their progress.


KIZURINI SPECIAL SCHOOL

Cerebral Palsy society of Kenya in efforts to strengthening and expanding its outreach program to the counties visited the school and found the condition of the children and their parents wanting.  

The Kizurini Special School CP is situated in Kizurini Memorial Primary School in Kaloleni. Among the 17 special schools in kaloleni District, Kizurini special school is the only one dealing with cases of cerebral palsy. The school was started in 2007 and currently admits 35 children who are on a boarding or residential programme meaning they learn and also live in the school premises.
The aim of the school is to train children with cerebral palsy with daily living skills and general rehabilitation. Among other objectives of the school is to create awareness about special needs education in the communities in Kaloleni and to make the school suitable institution that gives quality education. Kizurini primary was picked due to its central location and easily accessible by parents. The schools proximity to St.Lukes hospital also makes it ideal for children with Cerebral Palsy.

The Facility is faced with a myriad of challenges, starting with the land scape of the school; the school has a slope and stones which is a hindrance to children’s movement due to their disability. The facility lacks ramps which makes it disability unfriendly.

  • The school lacks therapists in the rehabilitation of these children leading to contractures or secondary disabilities.
  • Lack of enough facilities, the school has one room which serves as a class, dormitory, feeding area and also playing area. The school lacks teacher Aids. The mothers to these children have to come and take care of the children’s welfare. This arrangement poses a challenge in that these mothers have other family members to take care of back at home.
  •  The school also lacks furniture; such as beds, chairs/desks and beddings. The children have to make do with worn out mattresses and blankets that also serve as the curtains.
  • The state of the toilets and the bathrooms is appalling. They are not the type to be used by children with disabilities. The children use makeshift bathrooms which do not have roofs.
  • There is no a kitchen and so parents have to prepare meals outside, which is very cumbersome especially when it rains.
  • The store that they have is small and congested, and the food is not properly stored thus posing a health risk.
  • There is also lack of supportive devices such as; wheelchairs, standing and sitting aids among others.
  • The school also lacks electricity and water. Due to this they have to use lamps that pose a danger to the pupils due to their disability.
  • The institution has heavily relied on well wishers for food to feed the children since their annual budget cannot cater for all the needs. 


CASE STUDIES

Kerry, 12 years Old

Kerry, a 12 year Cerebral Palsied girl stayed at home with the parents and siblings, she did not attend school anymore due to age; the mother was unable to carry her (on her back) to school on a daily basis. The distance to the school was also a problem and using a motor bike was extremely expensive. Kerry has had no therapy for years now because the district lacks occupational therapists; this had worsened her condition.

According to Kerry’s parents, they noticed that Kerry was different from her twin when she was unable to sit at four months. The father says they had never received any help from the national council even after having Kerry registered with national Council.  The father lamented that times were tough for his family because Kerry was dependent on them for everything including daily living activities and was appealing to well-wishers to assist them in any way possible. 


Thomas Kazungu 

 
Thomas an eleven year old Thomas and living in Tsangatsini Location. Thomas was a very jovial and intelligent boy who cannot walk but improvised a way of moving by sliding. Thomas came from a very humble home, being that Tsangatsini was one of the marginalized areas in the country with very high levels of poverty. Thomas was also unable to attend school on a regular basis because the school was also very far from. The only means of transport available to them was motorbike. Thomas’ family was very needy, and in fact the day they were visited they were found not to have eaten for days.

CONCLUSION

The society observed was that the Agency (NCPWD) charged with the responsibility of looking after people with special was not felt in the grassroots, some of the people had never even had of registration of persons with the Council. Therefore the Agency needs to partner with organizations on the ground to be able to reach more people otherwise the country may not achieve disability mainstreaming.